Disclosing a hepatitis C diagnosis: stigmatised if you do, isolated if you don’t

The hepatitis C virus (HCV) is the leading notifiable disease in Australia.It is described as a stigmatised disease, as the majority of new infections are associated with intravenous drug use.The current qualitative study explored the lived experiences of those diagnosed with HCV.Fifteen participants (10 women and 5 men) who were HCV positive and not current drug users were interviewed about the impact of their diagnosis and how they have adjusted to it.The data were analysed using open and closed coding methods.Diagnosis was found to be a traumatic experience with considerable emotional impact that could be exacerbated by stigma, discrimination and a lack of information.Support is provided for a selfmanagement construct encompassing medical, emotional and life role facets.It was concluded that positive reactions to disclosure contribute to adjustment, whereas perceptions of stigma and negative reactions to disclosure may create barriers to self-management and personal growth.