Factors associated with patient experiences of the burden of using medicines and health-related quality of life: a cross-sectional study

This dataset (csv) and field labels (pdf) contains data from three questionnaires: 1) Demographics Background 2) Living with Medicine Questionnaire (LMQ-3) 3) EQ-5D-5L Questionnaire Demographic background includes few questions about participants and their medicines use. The LMQ-3 seeks participants views and opinions about the prescribed medicines use and how they affect their life. It consists of 41 items, measured using a five-point Likert scale (scored from strongly agree to strongly disagree) within eight domains: 1) perceptions about effectiveness, 2) concerns about medicine use, 3) patient-provider relationships and communication about medicines, 4) practical difficulties, 5) interferences with daily life, 6) side effects, 7) costs, 8) autonomy/control over medicine and acceptance of medicine use, all of which have been cited by users of long-term medicines as burdensome. The EQ-5D-5L is a standardised measure of health-related quality of life. It consists of 2 pages: the EQ-5D-5L descriptive system and the EQ visual analogue scale (EQ VAS). The descriptive system comprises 5 dimensions: mobility, self-care, usual activities, pain/discomfort, and anxiety/depression. Each dimension has 5 levels: 1=no problems, 2=slight problems, 3=moderate problems, 4=severe problems, and 5=extreme problems. The EQ VAS captures one’s self-reported overall health on a 20 cm vertical, visual analogue scale with endpoints of 0 (the worst health you can imagine) and 100 (the best health you can imagine).